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MS

 
What's your take? (click here)

Anonymous  

New widower of 1 week with MS needs emergency financial help

I have a friend who suffers with MS and struggles to continue working. His wife died 1 week ago after a long battle with Primary biliary cirrhosis. She had 2 liver transplants. Mounting medical bills resulted in losing thier house and back taxes. His income was cut in half when his wife died, she was 51 and on disability. The IRS also attached his wages so he does not make near what he was.
He needs $400 for car payment, $1000 for last month and this months rent and $400 for utilities.
He is a proud man and has trouble asking for assistance. He is also very easily overwhelmed and has trouble doing things like going to the social security department and standing in lines etc due to his MS.
Any suggestions to get him some quick help would be greatly appreciated.
I do think he will be fine once he gets over the hump so to speak.
reply to Anonymous
LadyValhalla  

request for emergency assistance for victim disabled by MS of domestic violence

My name is Nicole McAteer and I was recently diagnosed with MS, Meniere’s disease and T.I.A; on top of a heart condition I have had since childhood. I was recently engaged to a man who knew I was ill and as I became more so, he became very verbally abusive, leading to him throwing something at my face and giving me a cut and swollen bruising; he also took most of my back pay from SSI. I only make $674 per month and have no vehicle. I am in a wheelchair and am in dire need of a vehicle and assistance with funds to get to either California or Seattle to see the correct doctors to get me in remission. Never did I think I would EVER request assistance in this manner and this is quite difficult for me to ask. The vehicle or funds for such do not have to get a perfect vehicle as I have friends that can possibly help me do any work on it; that or I can do the work when I am having good days. I am a very happy and optimistic person in general and am trying hard to hold onto that, but found that when they took me from the bad situation and put me into the hotel it would only last 2 weeks. As of March 24th at 11am I will be homeless and a vehicle would help me a great deal in giving me some way to get to Colorado for my testing and assistance from them. I have barely $100 to my name and won’t get paid again until the 1st of April. I am working with various agencies, but unfortunately they can help very little as Casper Wyoming has very little funding to help such as me and no way to move me up the waiting list, even with my conditions. I would much rather have a vehicle to put my things in (all will fit in 2 suitcases) and would be willing to use it as a home temporarily until I can get the funds to go to either of my places of choice for correct physicians. I am sad and embarrassed to ask for such assistance, but it would be much appreciated. For those that are willing to send money, I have a paypal account, MissCholey@gmail.com and would use the funds to get to the correct doctors and be nearer my children, which the doctors believe may help push me into remission. I have been ill for more than a year and only just began receiving SSI. I hate being a victim and even more so asking for help, but I have no other choice it seems. For those who would rather speak with me and possibly provide alternate assistance; please email and I will provide you with my phone number that you may be able to talk to me for yourself. I am a very independent person, even with being ill, but am in dire need of assistance. A vehicle would be great assistance and I am able to get one from the local dealers for under $2000. My symptoms are severe on some days and better on others, though this stress is making me more ill and I would really like some help to get me to self sufficiency and not have to ask for assistance again. I had a stroke last Friday and fortunately there was no lingering damage other than the weakness and loss of sensation in my left leg, so I know how lucky I am right now. Though it is very difficult for me to ask for help, I feel I have no other choice. Please help me, either with a vehicle or cash. I will attempt to pay back anyone that assists, though it may be slow and would be eternally grateful for the assistance. Sorry to even ask and if I had alternative means I would use them. I have spoken to every agency and they have no emergency assistance beyond this two weeks from the looks of things. I am still researching and attempting to find alternate routes, but since only perfect strangers have been able to help, most of my friends are unable or unwilling because they are either his friends as well and don’t understand how my condition effects me or simply too busy. Any help I can get would be most appreciated. Thank You, Nicole McAteer "

reply to LadyValhalla
sstopper333  

Government grant help!

man with MS for fourteen years looking for help! I am trying to get a government grant to buy a house, if anyone can help, please do!

reply to sstopper333
sincerewithms  

About sincerewithms

Not sure if this page or site is real but I guess I will give it a try.  I am a 28 year old single woman.  I do not have children but I have a mortgage, car payment, + the other bills, utilities that most people have.  I recently have stumbled upon hard times because on July 30th 2010, I was hit head on in a car accident.  I am okay, however the bad part is, I am also an MS patient who was in remission since 2004 and the trauma from the accident has cause my MS to flare so I have missed work, thus missing overtime pay, which really is what keeps me afloat.  I am getting behind in my bills and I just need help.  Thank You
reply to sincerewithms
ALICE51  

mortgage for disabled

Hi, I need urgent help to secure a mortgage as i have to move asap.will be a first time buyer.I am disabled with MS,other health problems,partial sight,hearing etc.also need help to find a basic bank account any ideas welcome.

reply to ALICE51
jay2599  

About jay2599

I was diagnosed with MS when I was 19, went through some bad patches but since I started on Tysabri (drug info) iv been doing better. The past 8 months tho iv noticed a big increase of what i consider the worst symptom... fatigue. I view this as the worst because I can deal with the pains I have far easier than always feeling drained/tired like I didnt even sleep the night before.

The past 3 months I have been searching for a job that I can actually hold onto because the treatment I get (Tysabri infusion once a month) basically nukes my immune system and I get sick a lot. I lost my last 2 jobs due to this.

 So I came across this site today, hopefully I can use it to help myself out. If not at least help someone else someway with my thoughts/experiences.

reply to jay2599
JunieJune  

About JunieJune

Hello...my name is June and I have chronic pain 24-7...docs don't seem to care enough to pinpoint...write a pain med script and out in 15-20 min.  Although, latest diagnosis is MS. I do have Accute Sciatica, arthritis and osteoperosis. I suffer extreeme depression and hope to get treated for it soon. I also have sleep disorder. It has been years since I have slept thru the night...tried ambien (sp) but was one of the sleep walkers with memory loss.

A thank you to Brenna who introduced me to this site and hope she gets the aid she needs soon.

reply to JunieJune
gosia  

About gosia

I have multiple sclerosis and am in need of financial assistance in the amount of $5000.00 or any part anyone can help with. I have never asked for help before but this is a time in my life that without the extras we cant afford the MS is going to take more of a strong hold on my body.

I no longer can work and need help taking care of my daily needs. Now my husband has to be home to help me since I dont have the ability to walk well any longer-I fall alot.

My eyesight comes and goes with attacks and I am looking for help to get a few things to make life easier like cooling vests, walker and chair and a few other things so I can get out of the house more and feel alive like a 53 year old woman should .

Sometimes the stress of lack of funds for doctors, medicine and just living in general make the attacks come more often for me and it is so hard now that my husband must take care of me. Life in Arizona is not as good to me but we cant afford to relocat yet but with help we may find a cooler new place to live.

Any help would be appreciated. God bless you for listening and your time.

reply to gosia
sstopper  

About sstopper

My name is Shawn Stopper and I have had MS for 13 years now!  My problem is needing money to pay my bills because I am on SSD!  I have tried for grants all to no avail.  Please help me if you can!!  Thank you and God bless!!

 

Shawn Stopper

reply to sstopper
Eden Supportive Living (Chicag  

About epeppers

Hello. I hope life is well for you. I wanted to respond to many postings requesting assistance for the disabled.

 

Located in Buena Park in Chicago, Eden Supportive Living's
overall goal: To increase awareness for people with disabilities that with
the appropriate level of support, independent living is possible. Currently,
Eden Supportive Living supports a variety of disabilities, including
traumatic brain injury, spinal cord injury, amputees, MS and many others. We
are committed to providing viable support resources for those facing the
challenges of a physical or medical disability.

For some, maintaining a home becomes burdensome and the loss of independence
and quality of life is a situation no one should face alone. Eden Supportive
Living offers an innovative approach to assistive living housing by focusing
its services for physically disabled individuals ages 22-64. By combining
apartment-style housing with customized personal care and other services,
residents can live independently while enjoying the freedom of a 24-hour
support staff.

 I would be more than happy to provide a call or a personal visit to answer questions about how we may contribute to
the quality of life for a disabled adult.


Please contact me with any questions,

Best regards,



Elliott

Elliott Peppers

Marketing & Development Director
Eden Supportive Living

940 West Gordon Terrace, Chicago, IL 60613

Phone: 773-572-6491; Fax: 773-472-2985

www.livingineden.com

Email:
epeppers@edensupportiveliving.com


reply to Eden Supportive Living (Chicag
helplease  

About helplease

i am asking for help with my bills... mortgage, water, rent, phone, etc...

lost my job on 9/5/08...company - DB Roberts -- thought i was on drugs... (i was on my med for my migraines and back/neck pain but nothing illegal)... my speech was slurred, dizzy, trouble walking, comprehending, memory loss, etc...

i went to Dr. as soon as i could and i was diagnosed with MS 9/19/08, cannot work and waiting on disability. (had MRI's, catscan w/ and w/out dye on brain and back, did spinal puncture and 8 vials of fluid was removed)... on Rebif at this time (3 shots a week - i give myself)...

i am a single mother with a 17 yr old daughter.

many things hinder me from working... broke back in '83, have degenerative discs in neck/back, 3+ ruptured discs, migraines, anxiety/panic attacks, carpal tunnel, cognitive skills messed up, along w/ memory... , IBS, sciatic nerve.....and MANY other things... among them being chronic pain and depression on a daily basis... but, i have faith and i do believe...

anything would be appreciated.  thank you.

God Bless... t-, xo

additional08@bellsouth.net

reply to helplease
just2sweet318  

Still Reaching Out...to and for YOU!

 I'm a single mother of 2 boys, ages 14 and 23. My youngest lives with me, while my oldest lives in another state. I was  re-diagnosed with Multiple Sclerosis...December 2006. Originally diagnosed in 1997, I worked thru the many problems this disease afforded me, w/o insurance or a doctor per se...until an enjoyable yet extremely physically hard job brought about, little by little, regularly occuring symptoms of MS. I quit that job after over 2 years in hopes that I might be able to go back to work after a short break. I did do so, working in the mental health field. Again, loving the work and the people, but early rising and walking  to and from work, brought on more health issues and after my brother passed away soon after beginning this job, I decided something was bound to give and I didn't want it to be me. I applied for SSI and disability, started back with medical help, and went on medication for my symptoms.

As of August of 2008, I was finally approved for disability and my payments will begin soon. I was asked to have a payee and am lucky enough to have a good friend who agreed to take on that responsibility. You do find out who your true friends are at the most opportune moments! I know many changes will happen in my life...some of them frustrating and confusing..but mostly for the good. I actually think I will be better off than I have ever been in my life! Besides that, changes are something I've become ALL too accustomed to.

The one thing that keeps changing though,  is my diagnosis~Doctors simply cannot decide what exactly it is that I have! I understand because my symptoms can point to many things, so for now, I guess I will have to go along with the ones Social Security has given me....Fibromyalgia, Severe Depression, Chronic Fatigue Syndrome and Chronic Pain Syndrome. I guess it really doesn't matter what name it has....The symptoms exist every day !

 I try very hard to keep a smile on my face, remain as positive as I can for my sons. Neither of them complain and somehow still manage to worry about ME!! My youngest still rarely asks for anything and if he wants something, he saves the money he gets for birthdays, etc for it. He recently got his disability payment and what did he buy? A few video games and movies. He doesn't think it's any big deal to let me use a bit of his $$ to get things needed around home or to pay for a few bills until my own payments begin!  He helps around the home...not w/o complaints mind you..he STILL is a teen!...but he generally is so good natured and happy, I cannot believe my luck as far as sons are concerned. His older brother is exactly the same...both being glad they were raised by me and in a non material world. Do you know how much I wish I could have raised them WITH those little things? But I'm glad they know unconditional love, if not anything else.

My oldest calls all the time wondering how I am, despite any troubles he may have. He even wants to go into physical therapy so he can take care of me!! So, I am so thankful I can give him something he so deserves...a trip home for Christmas!! He says he doesn't want me to do it, cause I need the money so much but little does he understand how much of a gift it will be for ME and his brother!  

Many of the things I've written of earlier are still the same...I don't work outside the home, I still haven't taken up photography, I don't have a car and my assistance still consists of housing and food stamps. I know I will have higher bills after my disability pmt's come in, and more than likely my food stamps will be cut. BUT I do believe I will almost like having to take care of most of these things without the additional help. It will be the first time in a very long time I feel almost 'normal'!

Don't get me wrong...life is and will be frustrating still. Having additional funds coming in will not change my health or the new and old symptoms that come along with it. Tears will still flow freely from time to time.  I will  still feel 'stranded', alone, and frustrated from time to time. Yet, I still must keep positive thoughts going thru my mind and in my life. If I do so, positive things cannot help coming into my world and the prayers I hold for others will have that much more of a positive outcome.

So, if you need an ear, someone to talk to, or even just a place to gripe and get those feelings out....please don't hesitate to write. It may take me a minute but I will do my best to help out in whatever way I can.     

reply to just2sweet318
Lorriet   in reply to SysBot   on

Aidpage group discussing "MS"...

 in response to pattydothis...   

Hey! Patty,

That is a good idea, I just don't have much money to pay and I know kids don't work cheap like we did when we were kids. I am completely bedridden. I have been in this situation for 7 years. I used to get out to the doctor's twice a year but I can't get my left leg into the car anymore. I can understand your feeling of loneliness. I have my husband, my 16 year old daughter, my three little companions which are my cockapoo, pug, and beagle. But at times I feel like I am fighting this mess by myself, I know I am not but I feel like it. My MS really keeps me guessing. Sometimes I just don't know what is going to happen next. But I hear that is all part of the game. Talk to you later. Lorrie

reply to Lorriet
pattydothis   in reply to SysBot   on

Aidpage group discussing "MS"...

 in response to Lorriet...   

dear lorri; It was nice hearing from you. Look for a high school student to paint your rooms ,they are always looking for extra money. as far as my MS it is stable right now, thank god. How is yours? Even though i am married i still very along.

reply to pattydothis
Lorriet   in reply to SysBot   on

Aidpage group discussing "MS"...

 in response to pattydothis...   

Hi! Patty,

It was good to hear from you. What I really wish is that I could find someone to help me paint my living room and dining room. I am stuck in these two rooms and the walls are driving me crazy. My husband is not in shape to do it himself. I am still praying that you find the funds that you are in need of. Did you try and contact the public defender's group? Maybe they could help you or put you in the right direction to get help with the bill. We are having a difficult time but we are working on it. How are you doing with your MS? I don't take any meds because of the cost. Even with medicare there is such a large amount I would have to pay. Well I gotta go, hope you hear from you again soon. Lorrie 

 

reply to Lorriet
pattydothis   in reply to SysBot   on

Aidpage group discussing "MS"...

 in response to Lorriet...   

thank you so much for your letter i just saw it . sorry so late. My electric company was going to shut me off because i owe 4900 on my bill, but i have medical protection but i am not sure how much longer they will wait for a payment. I wish i knew a lawyer and maybe he could tell me. Im so sorry that your behind also , there must be help out there for people like us

reply to pattydothis
Lorriet   in reply to SysBot   on

Aidpage group discussing "MS"...

 in response to pattydothis...   

Hi! Patty,

I also have MS. I know the stuggles you are going through. I owe $950.00 for my Mortage. My husband and I are both disabled and things are hard. I will be praying that you get the help you need.  

 

reply to Lorriet
Lorriet  

About Lorriet

MS Challeneged!

My name is Lorrie and I have been bedridden for the past 6 years due to MS. I have been living in my living room in my hospital bed because I can not get up the steps anymore and my doorways are too narrow for my wheelchair to get through. I have not been out of our home because I can not get my legs into our car any longer. I am in need of help for some home renovations to be done, I am in need of a handicapped van, and I am in need of some financial help to catch up on some bills. I am also DESPERATE for Dental work.

 

reply to Lorriet
pattydothis   in reply to SysBot   on

Aidpage group discussing "MS"...

hello my name is patty and I have MS ,I have had it now for 5 years and since I was told I have MS my life went down hill. My husband is the only one working right now and I cant get disablity. The electric company is going to shut off my electric because my bill is4100. I need help fast just to keep my medicine good. Is there any help out there for me.

reply to pattydothis
SysBot  

Aidpage group discussing "MS"...

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